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Photo courtesy of Rick Guidotti, Positive Exposure 109

New York City, March 25 – A couple of weeks ago I received a larger-sized envelope on my doorstep. Initially I thought it was something for my partner. I’m blind, and I use a lot of different techniques or apps to adjust to a predominately sighted world. For this task, I scanned the mailing label with an app on my phone that converts text to speech to uncover who the sender was. In the end, it was indeed addressed to me, and it was my master’s in social work degree diploma.

For a moment, I caught myself reflecting on the care-free, and seemingly invincible version of myself from 12 years ago. I had been focused on getting a college degree, moving to a big city, and recording and producing stellar music. In contrast, the somewhat wiser, still witty as ever, and more cautious 30-year-old iteration of me is not meeting the expectations of my youth. It’s taken some time to embrace and love all the facets of what has made and continues to make me Abigail.

The me back in the early days of undergrad had envisioned the “grown up” me being Miss Independent. She’d have this super satisfying job that paid well and was, most likely, in the music industry. All of the stereotypes she tried to run away from about disabled people and traditional roles for women would magically dissolve if she lived in a big progressive city. From the outside looking in, you could have said I was well on my way toward accomplishing [most] of these things. [continue reading…]

Ketrina Hazell
Photo courtesy of Rick Guidotti, Positive Exposure 109

New York City, March 25 – Professionals always have tried to frame the expectations of my life, whether they were an educator, service provider, or medical professional. Doctors told my parents I would never be able to see, hear, walk, talk, or live a “normal” life. What is normal? Despite my parents being given low expectations of me, I am no less of a human in their eyes.

I asked my parents one day why I can’t walk or do certain things. At that moment I learned what my story is. We all have a story. What’s your story?

I was born premature weighing only two and a half pounds, so doctors said that I needed to stay in the hospital for weight gain. While there I received a lack of oxygen to my brain, and as a result my motor skills were impacted. At nine months old, my parents expressed concerns about my lack of progress in my milestones, and this early intervention is when my parents learned the name of my disability. Cerebral Palsy is a part of me. [continue reading…]

To celebrate World Down Syndrome Day, we’re sharing this conversation between Born This Way’s Sean McElwee and one of our Communications Apprentices, Madison Essig. Both Essig and McElwee are self-advocates with Down syndrome. [continue reading…]

Austin, Texas, March 17 – “When artificial intelligence overtakes human intelligence, how will people be treated?”

This is the question at the heart of the groundbreaking film Shadow, which made its world premiere at SXSW Film Festival earlier this week. Produced by Back to Back Theatre, a genre-bending drama with documentary elements, the film was created by individuals with intellectual disabilities and centers people with disabilities. Shadow unravels questions surrounding the disability community, ability, and the emergence of artificial intelligence. It tackles these innovative themes with fervor and a beautiful sense of artistic direction.

Three activists with intellectual disabilities, Simon, Scott, and Sarah, are leading a town meeting about the future impacts of artificial intelligence on the disabled community. However, things quickly go awry when there is tension between the three leaders and those they are speaking to. We come to understand that there is more than meets the eye in regard to the question of what artificial intelligence can do for people with intellectual disabilities. AI might be the consequence of a society that holds little value and humanity for those that don’t meet ableist, and sometimes absurd, standards. [continue reading…]

Los Angeles, March 15 – With less than one percent of children’s content featuring a disabled character, the new animated preschool series “Team Zenko Go!” is breaking barriers. The show follows a group of stealthy do-gooder kids who harness the art of distraction to perform anonymous acts of kindness for the residents of their town, Harmony Harbor.

One of the show’s main characters is a boy named Ari who recently has moved to town with his mother, and also happens to be a wheelchair user. Ari is voiced by Hartley Bernier, an actor who has lived with Intestinal Failure due to Total Hirschsprung’s Disease since birth, and also occasionally uses a wheelchair due to chronic pain.

“I think it’s really important for kids to see themselves represented on screen,” Bernier said. “There aren’t a lot of characters who have disabilities or medical complexities represented in mainstream kids programming.” [continue reading…]

(Trigger warning: sexual assault, bullying, homophobia, ableism)

Los Angeles, March 14 – When you’re disabled, when you’re trans, when you’re a child growing up in a rural community of abuse, your body does not belong to yourself. The most important thing you can do, as impossibly difficult as it is, is to reclaim yourself.

I always thought part of my problem was taking up space. No matter how much I try, I feel like I’m on center stage, forcing everyone to look at me by virtue of existing. But it’s a negative space. I’m not seen as a full person when I use my cane – people come up and ask intrusive, rude, even hurtful questions. I’m not seen as something binary, and therefore “real,” but some strange queer Other, due to my transness and gender presentation. I’ve never had space to breathe, never had physical space to take up fully as myself. Nowhere was safe for me to exist. So, for a long time, I didn’t. [continue reading…]

Christina Lisk

Los Angeles, CA, March 12 – My wake-up call to learned carelessness came in Summer 2021, when a violent crash forced me out of a work-induced haze. Until then, I had spent years in a modus operandi wherein I was expected to treat my pain as though it didn’t matter. Physical, mental, emotional—none of it mattered when I was expected to fulfill the traditional definition of work. “Traditional” is the key word when coming from a background wherein other forms of work were treated as inferior, and illness was seen as an excuse.

For the five years leading up to that crash, I staggered through work as I struggled with two undiagnosed illnesses: hidradenitis suppurative and Lyme disease. I worked as a housekeeper, pet sitter, intern, volunteer mentor, and freelance writer. None of it mattered, however, as it didn’t lead to the “good job” with benefits or offer the opportunity to climb within a corporation. In the days leading up to the crash, I was throwing myself into work in hopes of getting this “good job” at long last.

Had I allowed myself to see the signs, I would have stepped away from work much sooner to take care of myself. In summer 2021, my health was in serious decline after various forms of stress sent it spiraling out of control. Along with stressors from the pandemic and a broken hearing aid, I had been left by my partner because I didn’t agree to his timeline for children. I swallowed Aleve like candy, chased it with caffeine, and tried to hide migraine symptoms under a theatrical smile. [continue reading…]

Washington, D.C., March 12 – As we celebrate Women’s History Month and International Women’s Day, which take place every March, RespectAbility recognizes the important contributions made by women now and throughout the history of the United States. It is important to note this includes more than 22.7 million women living with a disability.

In fact, women report higher rates of disability than their male counterparts. According to the most recent Census Bureau disability data, released just this week by the Institute on Disability at the University of New Hampshire, fully 13.6 percent of women living in the community (not institutionalized) in America had disabilities, compared to 13.2 percent of men in America who reported a disability in 2020.

Despite significant gains across multiple sectors of American society, disabled women still face worse employment outcomes than men with disabilities. Out of approximately 10 million working-age women with disabilities, only 36.1 percent had jobs, compared to an employment rate of 38 percent for 10.7 million working-age disabled men. [continue reading…]

Los Angeles, CA, March 10 – The concept of a traditional college experience has long been a popular theme explored by films and TV shows. Frat parties, keg stands, annoying roommates – chances are everyone can recall at least one movie or episode of their favorite show that focused on the character(s) antics during their time at college. However, for myself and many others in the Disability community, it’s rare that we ever get to see our unique and intersectional college experiences represented authentically on-screen. Luckily, writer-director Ashley Eakin‘s new short film, Roommates, which made its festival debut earlier this year at Slamdance and will soon screen at SXSW in Austin, TX on March 12, does exactly that.

Produced by Paul Feig’s digital production company Powderkeg, Roommates is a light-hearted but powerful film that follows two new college students, Izzy and Sophia, played by Kelsey Johnson (who also co-wrote the film with Eakin) and Kiera Allen respectively, who are placed together as dorm roommates because they’re both disabled. After a somewhat rocky start, they end up finding common ground while sharing a bottle of vodka and getting personal with each other while pre-gaming before a big dorm party. What starts out as a fun night of taking shots quickly turns into a full night of adventures, officially christening Izzy and Sophia’s year together as college roommates. [continue reading…]